Diabetes Ireland is a national charity providing support, education, and motivation to people with diabetes, while raising awareness and funding research. Our goal is to help thousands of Irish people and their families live full, healthy lives with the right care and advice.
Care Alliance Ireland works to enhance the wellbeing of family carers so that they are better able to care for their loved ones. We work with our members on delivering the annual National Carers Week and are active contributors to Policy, Research and Advocacy relevant to family carers. We directly support family carers with our two projects, our Online Family Carer Support Group and our Re-emerge 2 project supporting family carers returning to employment and education
The Irish Neonatal Health Alliance (INHA) represents preterm and critically ill infants in NICUs and their families. We unite families, healthcare professionals, researchers, and policymakers to reduce preterm birth rates, support NICU families, and improve long-term outcomes for infants.
The Patient Advocacy Service is an independent, free and confidential service. We provide information and support to people who want to make a formal complaint through the relevant complaints policy about the care they have experienced in a Public Acute Hospital or a Nursing Home. We also support people in the aftermath of a Patient Safety Incident.
The Irish Cancer Society is dedicated to eliminating cancer as a major health problem and improving the lives of those who have cancer. Services include free information, counselling, night nursing, and transport for patients, all delivered with the help of a dedicated network of volunteers and healthcare professionals
Sage Advocacy is Ireland’s National Advocacy Service for Older People, offering information, support, independent advocacy, and safeguarding services. It also assists vulnerable adults and healthcare patients in certain situations where no other service is available and, since 2023, has expanded to address the advocacy needs of survivors of institutional abuse.
IPPOSI is a patient-led platform that gathers patients, science, and industry from across Ireland together to ensure patient voices shape health care, policy and research. It delivers advocacy, education and knowledge-sharing to improve understanding, strengthen collaboration and support innovation across the health sector in Ireland.
Rare Diseases Ireland (RDI) is the national alliance for rare disease patient organisations in Ireland. We work across all rare diseases to improve the lives of the estimated 300,000 people living with a rare disease in Ireland. We advocate for, empower and engage organisations, persons with lived experience, families and carers to have their voices shape policies and solutions that are driven by the needs of all people living with rare diseases.
Find us on Facebook at Melanoma Support Ireland https://www.facebook.com/groups/MelanomaIreland or email irishmelanomapatients@gmail.com Melanoma Support Ireland is a peer-to-peer patient group offering support to individuals and families living with melanoma across Ireland. Run by Irish melanoma patients, it provides mainly online connection with occasional meetups, fostering community and advocacy.
The All-Ireland Institute of Hospice and Palliative Care (AIIHPC) is a leading collaborative network working across the island of Ireland to improve palliative care. We bring together partners, professionals, researchers, and people with lived experience to advance education, research, policy, and public engagement that supports high-quality care. Useful Iink: https://thepalliativehub.com/
Patients for Patient Safety Ireland (PFPSI) have been working in collaboration and partnership with healthcare in Ireland since we were formed over 11 years ago under the WHO Patients for Patient Safety programme. We are working to the WHO Global Patient Safety Action Plan 2021-2030, the Patient Safety Rights Charter and other WHO guidelines, backed up by solid research from credible and reliable sources. Our ultimate aim is to empower every person in Ireland with the knowledge, skills and confidence to be active partners and advocates for their own care and the care of their loved ones. Truly person-centred integrated care should be experienced by every person, delivered by organisations through all the social determinants of health.
ME Advocates Ireland (MEAI) is a volunteer-run advocacy group in Ireland supporting people with Myalgic Encephalomyelitis (ME). We raise awareness of ME among the public, medical professionals and policymakers; lobby for equitable healthcare and social supports, promote appropriate diagnostic and guideline standards, and support patients, especially those with severe ME, to secure recognition and better care.
Family Carers Ireland is the national charity supporting 624,190 family carers across Ireland. Our mission is to recognise the vital role family carers play and improve their quality of life. We believe no one should have to care alone. Our Careline 1800 240724 offers confidential, friendly, and practical advice, while our community support teams provide one-to-one/group supports, advocacy and information on rights and entitlements. We also offer referrals to counselling and emergency respite services. All supports are free and available at every stage of the caring journey, including for young carers. Our HSE-approved Home Support Service is committed to ensuring family carers and their loved ones are safe, comfortable, and cared for to the highest standards.
Prader Willi Syndrome Association Ireland (PWSAI) is a national support organisation that helps individuals with Prader–Willi syndrome and their families through advocacy, education, support and advice, while working to improve services and awareness across Ireland.
Chime is Ireland’s national charity for Deaf and Hard of Hearing people. Through advice, services and our community we support those who are Deaf or Hard of Hearing, while also championing for equal rights and advocating for full inclusion in every part of society.
The Dementia Services Information and Development Centre (DSiDC), is a national centre for excellence in dementia and is committed to best practice in all aspects of dementia care. Our vision is of a society where the civil and legal rights of people with dementia are fully respected and they are able to participate in the making of all decisions that affect them without discrimination or prejudice.
Delivers specialised person-centred supports to adults with physical, sensory and neurological conditions in homes, residential centres, supported accommodation and respite facilities.
Vision Ireland, Ireland’s national vision rehabilitation agency, works with children and adults across the country through a wide range of programmes and rehabilitative services, all designed to support confident and independent living. Vision Ireland’s core services provide a one-to-one functional vision assessment and the development and provision of person-centred services. Vision Ireland’s service model operates through a range of centre, domiciliary, and community-based services, supported by group and peer activity where appropriate.
Epilepsy Ireland is the national service for people who live with epilepsy, their families, and carers. Our vision is to achieve a society where no person's life is limited by epilepsy. We want to empower all those affected by epilepsy to achieve their full potential by providing high-quality community-based support and education, raising public awareness, conducting effective advocacy and supporting epilepsy research.
Housing Association for Integrated Living (HAIL) has been operating since 1985, providing high-quality independent social housing with specialist mental health tenancy sustainment supports. HAIL provides homes to people with long-term mental health support needs as well as general needs social housing. Our visiting tenancy sustainment model supports people to live independently and be integrated in the community. This promotes autonomy, recovery, stability and full participation in society within regular housing settings rather than institutional environments.
Usher Syndrome Ireland is a national, peer-led organisation providing information, support, and connection for individuals and families affected by Usher syndrome, a rare genetic condition causing progressive hearing and vision loss. We work to raise awareness and understanding of the condition, support research, and strengthen the Usher community by connecting people, sharing lived experience, and helping individuals navigate life from diagnosis through to living confidently with Usher syndrome.
Mental Health Reform (MHR) is Ireland’s leading national coalition for mental health. We have over 80 member organisations working across the voluntary and community sector. Our vision is of an Ireland with accessible, effective and inclusive mental health services and supports. In line with this vision, we drive the progressive reform of mental health services and supports, through coordination and policy development, research and innovation, accountability and collective advocacy. Together with our members and thousands of supporters, we advocate for improvements to Ireland’s mental health system.
Spina Bifida Hydrocephalus Ireland (SBHI) are a national charity supporting those in Ireland living with Spina Bifida AND/OR Hydrocephalus. Supports are available for all stages of life from pre-birth diagnosis, supports before school, school awareness training, employment, respite, family respite, day service and more. We aim to enrich and enhance the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus and the lives of their families and wider circle. We aim to foster an environment in which every person living with Spina Bifida and/or Hydrocephalus can lead a fulfilled life.
ADHD Ireland is the national support service for families, children and adults with ADHD. We are a national level non-profit organisation dedicated to providing up-to-date information, resources and community building opportunities to individuals with ADHD, as well as parents of children with ADHD and the professionals who serve the ADHD community. We work to realise our mission by providing advice and support through our phone line, email and social media platforms, the development of resources and publications, the delivery of information sessions, psychoeducation, programmes for parents, teachers and adults, as well as offering trainings for workplaces. We also work with partners (universities and third level colleges, government agencies and other organisations) to engage the wider community in reducing stigma, improving acceptance, advocating for those with the condition, and contributing to research
Parkinson’s Ireland is the main patient charity and service provider for people living with Parkinson’s disease and their care partners in Ireland. Parkinson’s Ireland provides a wide range of services to people living with Parkinson’s Disease nationwide, including a Nurse Callback Service, a specialists counselling service, local branches which organise weekly services and supports in each area, and online classes such as mindfulness, Singalong, and Yoga. Parkinson’s Ireland also provides information and resources relating to Parkinson’s disease, advocates on a range of issues and funds research. By providing a range of services based in the community, we are actively reducing the strain put on our acute health services."
Founded in 2002, for more than 20 years the Irish Lung Fibrosis Association has supported patients and the lung fibrosis community with education, advocacy, research, and direct services. ILFA is an award-winning patient-centred charity that helps people at all stages of the lung fibrosis journey.
Ireland’s leading organisation for people with physical disabilities, providing services, supports and programmes in the areas of independence, empowerment, access & mobility and sport along with a key strategic focus around advocacy linked to our vision of an Ireland where people with disabilities enjoy equal rights, choices and opportunities in how they live their lives, and where our country is a model worldwide for a truly inclusive society
Dyspraxia DCD Ireland is the national organisation supporting children, adolescents and adults with Developmental Coordination Disorder (Dyspraxia), their families, and the professionals who work with them. We focus on improving understanding of Dyspraxia and promoting equitable access to appropriate supports across the lifespan. We provide evidence‑informed, neuro‑affirming services, including information and guidance, parent education and peer support, therapeutic and social programmes for children and young people, and training for educators, health professionals, and community organisations. All services are delivered by experienced, appropriately vetted facilitators and are designed to be inclusive and family‑centred. Advocacy is central to our work. We engage with the HSE, Government departments and policymakers to represent the needs of people with Dyspraxia, contribute to consultations and policy development, and advocate for improved assessment, intervention, and service pathways nationwide.
The Irish Motor Neurone Disease Association (IMNDA, CHY 8510) is the only organisation of its kind in the country. We are dedicated to working on behalf of people living with MND and their families and carers. Our key services include home visits by our 7 MND nurses, financial assistance towards home help, counselling services, and the supply of specialised equipment on loan. We also fund and promote research into the causes and treatments of MND.
Children in Hospital Ireland (CIH Ireland) works to ensure that every child's experience of hospital is as positive, supported and child-centred as possible. We promote and support the wellbeing of children, young people and families, before, during and after hospitalisation. CIH volunteers facilitate play and recreation opportunities for children across 15 paediatric units in Ireland. Volunteers also provide a welcoming and wayfinding service in CHI at Crumlin. CIH's Family Support Service provides information and advice, in-person and online, to families when they have a child in hospital and host information webinars on relevant topics for parents and carers.
The Multiple Sclerosis North West Therapy Centre (MS Centre) located in Sligo is a unique service that provides essential therapies and rehabilitative supports for people with MS and other neurological conditions and their families in the North West. Services include one to one neuro Physiotherapy sessions, dry needling under clinical scope, in-person and online exercise classes, lower/upper limb, chair-based, strengthening, balance classes and Pilates. In addition, the MS Centre provides Education/Information talks, Counselling to clients and their families, Podiatry Clinic, Hyperbaric Oxygen therapy, Reflexology, and Peer Support. The MS Centre acts as a conduit to community-based services such as Orthotics, Occupational Therapy, Urology and other voluntary disability organisations.
For the over 8,000 families in Ireland with a child with a life-limiting condition, dealing with transport, tolls, parking and logistics should be the last thing on their mind. With all major children’s health facilities concentrated in Dublin, transportation can be the defining barrier for Ireland's youngest patients, leaving children without access to their healthcare and parents with the unnecessary stress of logistics. BUMBLEance is Ireland’s only dedicated Children’s Ambulance Service. Our charity makes a difference by empowering the thousands of families unable to access their child’s healthcare by providing journeys in a safe, caring and fun environment, completely free of charge. At BUMBLEance, our heroes wear seatbelts – not capes. Our dedicated drivers operate a fleet stationed across the country, offering personal, local support to each child that travels with us. Each vehicle offers children a break from the harsh realities of medical treatment with sensory lighting, child-friendly decor, entertainment and space for parents and siblings. By offering these door-to-door journeys, we reduce the worry and anxiety parents carry. Because of BUMBLEance, parents have the flexibility to mind their other children and reduce missed work. Without the stress of managing comfort, parking, tolls and logistics, BUMBLEance lets parents take a back seat to focus on what they do best: care for their child.
Acquired Brain Injury Ireland provides essential neuro-rehabilitation services and support to anyone impacted by a brain injury to help rebuild their lives. As Ireland’s leading provider of community neuro-rehabilitation for those aged 18 to 65, we support an estimated 1,300 people annually, as well as their families and carers. We provide a range of expert clinical services and supports specific to the needs of each person with a brain injury, with individually-designed rehabilitation plans that assist them in reaching their goals. We offer a variety of services including assisted living homes, clubhouses, in-home and community rehabilitation, case management, and family and carer support programmes. Through these nationwide services, we help survivors to adapt to their new reality, regain valuable skills and live as independently as possible within their communities. At Acquired Brain Injury Ireland, we believe that every brain injury survivor should have the chance to rebuild their life and live it to the fullest, and we will never stop campaigning to make that belief a reality.