Diabetes Ireland is a national charity providing support, education, and motivation to people with diabetes, while raising awareness and funding research. Our goal is to help thousands of Irish people and their families live full, healthy lives with the right care and advice.
Care Alliance Ireland is the national network supporting family carers, ensuring their role is recognised and valued in society. We deliver projects like online support and Re-emerge 2, and work with organisations on initiatives such as National Carers Week, research, and policy advocacy.
The Irish Neonatal Health Alliance (INHA) represents preterm and critically ill infants in NICUs and their families. We unite families, healthcare professionals, researchers, and policymakers to reduce preterm birth rates, support NICU families, and improve long-term outcomes for infants.
The Patient Advocacy Service is an independent, free and confidential service. We provide information and support to people who want to make a formal complaint through the relevant complaints policy about the care they have experienced in a Public Acute Hospital or a Nursing Home. We also support people in the aftermath of a Patient Safety Incident.
The Irish Cancer Society is dedicated to eliminating cancer as a major health problem and improving the lives of those who have cancer. Services include free information, counselling, night nursing, and transport for patients, all delivered with the help of a dedicated network of volunteers and healthcare professionals
Sage Advocacy is Ireland’s National Advocacy Service for Older People, offering information, support, independent advocacy, and safeguarding services. It also assists vulnerable adults and healthcare patients in certain situations where no other service is available and, since 2023, has expanded to address the advocacy needs of survivors of institutional abuse.
IPPOSI is a patient-led platform that gathers patients, science, and industry from across Ireland together to ensure patient voices shape health care, policy and research. It delivers advocacy, education and knowledge-sharing to improve understanding, strengthen collaboration and support innovation across the health sector in Ireland.
Rare Diseases Ireland (RDI) is the national alliance for rare disease patient organisations in Ireland. We work across all rare diseases to improve the lives of the estimated 300,000 people living with a rare disease in Ireland. We advocate for, empower and engage organisations, persons with lived experience, families and carers to have their voices shape policies and solutions that are driven by the needs of all people living with rare diseases.
Find us on Facebook at Melanoma Support Ireland https://www.facebook.com/groups/MelanomaIreland or email irishmelanomapatients@gmail.com Melanoma Support Ireland is a peer-to-peer patient group offering support to individuals and families living with melanoma across Ireland. Run by Irish melanoma patients, it provides mainly online connection with occasional meetups, fostering community and advocacy.
The All-Ireland Institute of Hospice and Palliative Care (AIIHPC) is a leading collaborative network working across the island of Ireland to improve palliative care. We bring together partners, professionals, researchers, and people with lived experience to advance education, research, policy, and public engagement that supports high-quality care. Useful Iink: https://thepalliativehub.com/
Patients for Patient Safety Ireland (PFPSI) have been working in collaboration and partnership with healthcare in Ireland since we were formed over 11 years ago under the WHO Patients for Patient Safety programme. We are working to the WHO Global Patient Safety Action Plan 2021-2030, the Patient Safety Rights Charter and other WHO guidelines, backed up by solid research from credible and reliable sources. Our ultimate aim is to empower every person in Ireland with the knowledge, skills and confidence to be active partners and advocates for their own care and the care of their loved ones. Truly person-centred integrated care should be experienced by every person, delivered by organisations through all the social determinants of health.
ME Advocates Ireland (MEAI) is a volunteer-run advocacy group in Ireland supporting people with Myalgic Encephalomyelitis (ME). We raise awareness of ME among the public, medical professionals and policymakers; lobby for equitable healthcare and social supports, promote appropriate diagnostic and guideline standards, and support patients, especially those with severe ME, to secure recognition and better care.
Family Carers Ireland is a national charity who support family carers through the provision of emergency care planning, counselling, specialised training and education programmes, wellbeing support, crisis management, respite including emergency respite, advocacy, peer support groups, information on rights and entitlements and many other worthwhile initiatives. Family Carers Ireland’s mission is to ensure carers are recognised, supported, and empowered so they don’t have to face caring alone.